This guide contains information that persons with head injury, their
families, and friends can use to adjust to life after head injury. It includes
resources to enhance one's knowledge of head injury, coping and caregiving
skills, and the general quality of life for the person with a head injury.
The resources listed are in a variety of forms, including telephone hotlines,
magazines, newsletters, pamphlets, booklets, and books. Resources were selected
based on their usefulness to people without medical backgrounds and availability
through clearinghouses, libraries, or publishers.
For user convenience, most of the listings include a phone number. In some cases
the caller will be routed through a system, which may put the caller on hold, or
request the caller to explain the need or question more than once. Patience and
persistence will pay off. Some of the organizations have answering machines that
will record messages when staff members are not available.
I've now also learnt that they have a Web Page on www.naric.com
Available is Stephanie de Sylva's List of lists,
which ambitiously aims to contain a reference to every mailing list on the
Internet. It can be viewed on the Web through a searchable page, or can be
downloaded in Usenet in 21 parts.
Avonlea Care Centre is a specialized care home
for survivors of severe traumatic brain injury (TBI), providing long term care
for brain injured adults. At Avonlea we provide extensive rehabilitation
programs that include cognitive, recreational, hydro, physiotherapy,
group/individual therapy and twenty four hour specialized nursing care, to
maximize the persons functional abilities and quality of life. Avonlea is
recognized by Health Care, Case Management and Insurance Professionals and is a
leader in the field. Complete individual programs are set up by the
Physiotherapists, Speech Pathologist, Occupational Therapists, Dieticians and
Recreational Therapists. Avonlea Care Centre is located in a small crescent in a
quiet residential area. We are a Wheelchair accessible facility with elevator,
ramps, showers and hydro-lift tub.
. Fibromyalgia is well covered in
a page at http://www.missouri.edu/~c264299/fibromyalgia/index.html
Another area that has been promoted on the TBI-SPRT list are the TMJ
Foundation's Pages.. These are for people whose head injury is either to, or
affects, their jaw. Basically, they seek to place us, the users, in contact with
people who can provide practical, common-sense help rather than to provide it
themselves. They were going since 1986, so you'd have thought they'd got a
pedigree. But alas! I have lost contact with them; if anyone
can find a link or email to them, please let me
The Virtual Hospital is a new
idea where there's medical information on line 24 hours a day. Caregivers and
patients alike can benefit here, although we'll have to push for our own
specific page there. I'm also told that the Index
to the Virtual Hospital can be found by Email if you need that - the address
There's another INTERACTIVE Virtual Hospital in
Los Angeles which you need to register into. It takes $15 to register, then
choose the Health and Fitness Clinic or the ABI/TBI Forum. The connection
actually covers a heck of a lot more besides "hospital activity", and
can be described as "Compuserve for free", only it isn't.
Also around is Mediconsult, who seem
to provide an answer to nearly every medical question, online. At least,
that seems to be the aim.